Personal Experiences of Stigma Survey


We are pleased to share an exciting survey tool for partners and allies about how people experience stigma.

PAN, in partnership with the Community Action Initiative and a working group of engaged community members and partners, explored how we can better evaluate the experiences of stigma and developed this survey inspired by research and evaluation in this area.

By sharing the survey with you, we are hoping to align different work on stigma in the community, to find common ways to talk and learn about stigma across communities and populations.

THIS TOOL IS FOR YOU if you are thinking about:

• Collecting the lived and living stories and experiences of stigma in the community to raise awareness about stigma

• Identifying and understanding structural and systemic stigmas and supporting advocacy or collective action for systems change

• Measuring changes in how your members/clients/patients experience stigma over time or as a result of a program or service

• Improving programs and services and to assess the differences that community organizations are making for their clients

• Conducting research on the lived and living experiences of intersectional stigma

• Comparing and contrasting experiences of stigma among different communities and groups

To create a community of people and groups that are working toward addressing stigma, please complete the form at the bottom of the page. We hope you join this community so that:

1) We are able to follow up with you and learn more about your group and your work, give you an opportunity to share your feedback and invite you to a larger community of organizations and groups that are using this tool.

2) We can build up on the collective work in this area. We may invite you to complete a short evaluation so we get a better understanding of how the tool is working and how it can be improved.


Learn more about why we developed this survey and who was involved

What is stigma?

Stigma is an ongoing and persistent issue that significantly impacts people’s lives. Stigma refers to negative beliefs that society or groups of people have about someone or the negative feelings we might have about ourselves. It can affect how we think about ourselves and how others treat us. From other work on stigma, we learned that it is not one particular kind of stigma but multiple layers of stigma and discrimination that create these feelings, directed at people who use drugs, people living with HIV, people with lived experience of hepatitis C, newcomers, people who are 2SLGBTQ+, and others.


The history of the working group

This work was inspired by the discussions among community partners about the ways to capture the experiences of stigma in a harmonized way so that we are able to draw a collective picture of the experience of stigma and compare how these experiences differ and/or how they are similar across the communities and groups of people. This work was also inspired by several other projects that focused on stigma.

In recognition of the multiple factors that make up who we are and how we experience the world around us, the working group focused on developing the survey that aims at capturing the intersectional experiences of stigma.

To ensure that multiple perspectives and voices are represented, we invited a diverse group of people to join the working group, including priority populations experiencing stigma in the province, people with lived experiences as well as staff from community-based organizations; funders; academics, researchers, evaluators; and representatives from health authorities.

Connect with us: [email protected]


We would like to thank CAI for supporting the development of this tool and a big thank you to all of the members of the Stigma Evaluation Work Group who shared their ideas, provided their feedback and made the survey possible.


In order to download the Personal Experiences of Stigma Survey and accompanying resources please provide your contact information so we can see where it is being used. We may also contact you to  learn more about how you have used the tool.


Consent to be contacted(Required)
PAN will not share or distribute your information.